Posterous theme by Cory Watilo

Epilouge

It's been three weeks since Nanna died. Her apartment is mostly cleaned out, with stuff being distributed or stored or donated.

Princess got released from the hospital on April 28th and went back to school and intensive outpatient therapy. Then she had an outburst in therapy last Wednesday and threw something at the art therapist, hitting her in the head but not injuring anyone. Princess was regretful and apologetic and was assured that everything was OK and that she could move past the incident. Then a few hours later, a police officer showed up on our doorstep to arrest her for 2nd degree assault against the therapist. I am waiting to hear from juvenile services regarding whether prosecution will continue or whether the charges are being dropped.

My Board meeting went off with only minor hitches, and I think I am more aware of the problems and concerned about not meeting expectations than any of the participants are. Another smaller scale meeting is taking place next week, so I am still on that same hamster wheel.

Mothers' Day is in a few days, and my mother just wants it to be over. I want a day to just...be. To sleep, to eat, to knit or to do nothing. I am getting half of a day for it, but must put on my happy face to celebrate on Sunday afternoon with my in-laws.

And life continues to go on.

The Main Plot

It was a Tuesday, about a week after the hospice care had started, when the hospice nurse advised bringing the family together. She gave us a 48 hour timeframe, maybe less. My sister informed me at work as soon as she knew. My dad had accompanied Princess on the field trip she’d earned, and my sister asked me whether I thought he’d gotten back yet. He was, and she contacted him with an update. I contacted my husband, who was working late that night on a rehearsal that couldn’t be rescheduled. We couldn’t get someone to cover the kids for me so I could go to the apartment after work, so I picked up the boys, made dinner for the four of us, and waiting until Hubby got home around 9:00 to drive back down to be with my family.

The assembled group consisted of my mom and sister, three sets of aunts and uncles (the fourth was due in town on the weekend for my cousin Jon’s wedding), and four cousins with a fifth on her way up from college.  Nanna was sleeping, her breathing shallow and noisy. We mostly rotated through the bedroom, with my aunt laying right by her side in the bed so that she was never alone.

After a few hours, my mom and my sister and my aunt insisted on me going home. I couldn’t skip work the next day; I had an important meeting that I couldn’t reschedule. I wanted to stay, yet I couldn’t handle staying any longer. They stayed through the night, being there to represent all of us who couldn’t.

I stopped to visit again on Wednesday morning, on my way to work, on an impulse. My first meeting wasn’t until 9:00, so I texted our Exec to let her know I’d be in just in time for that meeting.  I stayed with Nanna for about 20 minutes, and told her I would be back that afternoon, when I finished my last meeting at 2:00. When I got to work, our Exec rearranged the schedule to move my 2:00 to 1:00. She would do whatever I needed her to do so I could try to be there for Nanna at the end.

As soon as I got back to my desk from my 10:00 meeting, I saw a missed call from Princess’s school on my office phone and my mobile. My heart sank. When I called back, the counselor told me that Princess had experienced an episode of suicidal ideation and would not re-engage with staff. She was on her way to the ER. So, I was too.

I arrived at the hospital around noon. I texted my sister and my husband on the way, promising an update when there was one.  Around 2:15, I got a message from my sister. Nanna was gone. I didn’t even have it in me to cry at that point. A few more hours passed without our getting any further with Princess’s situation. Around 7:30, my husband brought me a sandwich for dinner and my phone charger, which I’d requested. I stayed on Facebook and Twitter and email trying to remain connected with the people I should have been with (but being with them meant I wouldn’t have been with my daughter, and I needed to be there, too). The ER social worker came soon after, and made the recommendation that I didn’t want to hear- intake to a mental health facility. I caught a few hours of sleep on the pull out chair in the hospital room, and the nurse woke me around 1:30 AM to bring me paperwork to admit Princess to a hospital not far from my parents’ house (a facility we’d never used before, but our best option because our first choice had no beds available) and let me know the transport would arrive by 2:30. I followed the ambulance to the hospital, worked through the admissions paperwork, and drove home. I took my medication, filled out the note Hoss needed for school on Thursday so I could take him to his scheduled doctor appointment, and collapsed into bed about nine minutes before Hubby’s alarm sounded to start his morning. I fell asleep solidly enough that I didn’t hear the boys prepare for school, didn’t hear Hubby explain why he was taking them instead of me. The alarm I set went off at a time when I would normally have been knee deep in preparing documents for my upcoming Board meeting.  I checked in with my mother for mutual brain dumps- mine to provide an update on Princess, hers to let me know what arrangements were likely to happen for my grandmother. I checked my email, I took Hoss to his therapy appointment, I stopped at the church to put Nanna on the prayer list at Mass. I spoke to the doctor and the social worker (by phone, each in a separate conversation) to give them more history and background and any insight I could about what was happening to my child. I packed a bag to take to Princess at the hospital and stopped by my office to pick up my notes for what songs and readings I thought my mom might want for her meeting with the priest on Friday. Then I picked up the boys so that my husband could go see our baby girl (even at 13, she is my baby girl) before his rehearsal. I oversaw homework, I fixed dinner. I put the boys to bed and started looking for pictures for my sister to use in the slideshow at the funeral home, I texted with cousins in our shared grief, but I still didn’t cry.

I focused on work on Friday morning. I did things that could not be postponed or delegated. I tried my best to feel normal. At 1:00, I had an appointment with the social worker to outline the first day of the hospitalization and met with the doctor to discuss his plans for treatment and medication. I got to visit with Princess, since I wasn’t going to have a chance that night. I picked up the boys from school, ran a couple errands, I emailed my co-teacher and the head of the religious education department to say I wasn’t going to be able to teach class on Saturday morning, then I went to lay down. Two hours later, my husband woke me up so we could make dinner. He had to leave after dinner to go stay with his father, whose Alzheimer’s Disease has progressed to a point where he cannot be left alone when my mother-in-law goes away for the weekend. Once the boys were asleep, I poured a few fingers of Scotch  (not Nanna’s brand, though) into a glass I’d kept from my grandfather’s bar when we cleared out the house two years ago. More texting and Facebook-ing and looking at pictures.  My sister had told me she would take the boys on Saturday, take them to the ball game and meet me in the evening, so that I could do whatever I chose to. I visited Princess during the mid-day visiting period. I went to church as scheduled, and avoided eye contact with everyone with whom I was serving when Nanna’s name was read during the prayers for those who had “gone to sleep in the hope of rising again” for fear that I’d start crying and not stop. We went out for dinner, then I took the boys home and waited until they were asleep before I decided to wallow. But I still couldn’t quite let myself let go to cry.

The funeral was on Tuesday. I took the boys to school and met my parents at their house before we joined the rest of the family at church. My reading got a little blurry and I had to breathe through some of it, but I held it together. The weather was rather pleasant, unlike so many interments I've attended in the rain or the wind or the overcast nothingness. We stood and said our appropriate prayers and hugged each other. Then my sister fell apart crying. And my floodgates let loose. We huddled, joined by a few others who glommed into the cry-fest for that moment. Then we all dried our eyes, took our deep breaths, and moved on. Reception at the assited living facility's party room, the same room where we'd conducted our last few family Christmas gatherings (complete with a visit from our favorite party crasher, a gentle old guy with dementia who would had a tendency to walk away with unattended wine). We retired to my uncle's house, with its bar still set up on the ping-pong table after his son's wedding-related festivities three days earlier. We shared our crap; our amusements and our sorrows were all fair game. And we vowed we'd find more ways to bring everyone together for those dumping sesions, but for less bleak reasons.

 

I got home after the boys were in bed. My brother-in-law had been babysitting until one of us could get home (Hubby had a late meeting at school). He left in a hurry, having been at our house for almost 6 hours at that point. I snuck into Hoss' room to say good night, and upon sitting down on the bed, felt myself drop with a "thunk."

Earlierin the evening, my brother-in-law had tossed Hoss a bit too enthusiastically down on the bed while playing. A number of sub-mattress slats were broken, but Hoss is small enough that putting the cracked slats back in position gave him enough support to sleep. My extra weight, however, was more than the cracked wood could bear.

After a day full of crying, I had no choice but to laugh.

Prologue

Ever since we moved Nanna out of the house she’d lived in for over fifty years into a “senior living community” two years ago, I’d avoided facing things. I knew it was a good idea for her to move, that staying in the house just wasn’t feasible with her declining mobility and increasing health issues.  Going to visit her apartment once she moved was a reminder of how we’d all had to let go of the house and what it represented.  I kept meaning to go visit her place, but life would get in the way. I saw her whenever we had family get togethers at my parents’ house or my aunts and uncles’ or when we had our Christmas parties in the community room at Nanna’s building. But I never seemed to get  myself in gear enough to face visiting her one on one, in her space.

 It was March when I started to face the facts about how little time was left.  I had off the first week of April while the kids were on Spring break; I’d take the kids and go visit her then. Except that my sister warned me that waiting another month might not be a good idea. Nanna’s anemia was worse, despite her blood infusions. She was becoming less and less mobile, and less able (or inclined) to assist in moving herself when someone tried to transfer her from bed to wheelchair or from wheelchair to vehicle. She was becoming more forgetful, more erratic in her behaviors.

 I went on Sunday in late March.  My mom, my sister, an aunt, uncle and a cousin were there as well. We chatted about stuff. Nanna’s lunch was delivered while we were there; she barely ate at all. After awhile, the nurses came to put her to bed, not as much for napping purposes but because sitting in her recliner without moving made her unhealed bedsores get worse- they’d been there for months without going away, despite treatment. We all left the visit with the words we didn’t want to say hanging over us.

 A few more weeks went by like this, with emails exchanged among my mom and her brothers about the medical procedures and the reports from the doctors and the lack of improvement or positive prognosis. My sister broached the hospice topic, only to be shut down by elders telling us that we weren’t at that point yet.  Then somehow they decided we were at that point. Nanna’s primary doctor served on the board of one of the local service agencies that provided hospice care. They could come into her home to provide the services because she was already in a facilitated environment. The coordinator spoke to family, explaining the services and asking how ready everyone was for what hospice really meant, and estimating that Nanna’s seeing Mother’s Day was only an outside chance.  

Comfort flowers

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My department gave me a nice flower arrangement for my Nanna's passing. Or, more accurately, my friend Michelle got a nice arrangement and signed the card from the whole group. She said she would have given me a bottle of wine instead of flowers if the liquor store had been open as early as the florist was. See? I told you she is a friend!

The state of...things

I am currently sad. And angry. And proud. And sort of silly.

My boys have just had birthdays recently. Hoss turned 11 three weeks ago, Joe turned 9 one week ago. Let me emphasize that- my baby boy, my final bonus child, is in the final 358 days of a single digit age. At their birthday party, Princess was discussing books with my sister. The YA novels that she likes so much (the series and standalones by Margaret Peterson Haddix) are exploring concepts and plots that keep adults interested. It seems like she was just reading Chicka Chicka Boom Boom, or Angelina Ballerina. Now she's loaning books to her 40something aunt. We got recommendations for Hoss' gifted and talented class placement for middle school. He scored in the 85th percentile in math when they did the testing. That's a good score on its own, but even more impressive when you consider that the criteria used was based on 9th grade achievement. Little Joe is working after school with another boy to create a movie with one of the teachers. My kids kind of rock.

During the last two weeks, I've gotten phone calls from the schools resulting in 4 days of rushing out of the office to pick someone up, one of those being a trip to the ER for a psych consult (not my doing; the counselor who was called in insisted upon it). There have been many calls and email to the various members of the mental health/behavioral support systems and some changes in providers. Things are OK for now but could flare up at any time. This past Friday was also the third anniversary of my first big leap into the pediatric psychiatric experience. Seven more ER visits (culminating in four inpatient stays) have not made it all that much easier to handle.

I went to a show this weekend, somewhat impulsively. I say "somewhat" because I heard about the show, thought I might like to see the show with Hubby, and bought tickets less than a week before we went. To a normal person, that is not impulsive at all. For me (whose theater excursions usually consist of me buying tickets and planning transportation and picking out an outfit months ahead of time), it's quite a leap.  

I am going to visit my Nanna tomorrow. There is a chance, I'm not sure how big of one, that it will be the last time I really have a chance to sit down and chat with her. She may be going into hospice care, or she may have some procedures done that defer the need for hospice care for awhile. Her breathing is getting more difficult, her blood counts are not good and she has had a number of blood infusions. She has various incidents of maladies for which we can only hope to get a cause determined if she is subjected to uncomfortable or invasive procedures. She's 89 years old. I don't know if she knows how sick she is or whether she wants to fight or whether she is just tired of everything. I don't want to ask because I don't want to articulate the worst. I don't want to avoid asking because I don't want to take the chance of losing her without having let her say what she wants to say to any of us. I'm a jackass and a wuss for not visiting her enough in the past 2 years, since she moved into her assisted living facility.

Life is messy. Some of it is messy like eating a rich ice cream cone on a blisteringly hot summer day, as you try to catch every delicious drop before it drips stickily down your hand. Some of it is messy like catching the heel of your shoe in a sidewalk grate during a rainstorm and twisting your ankle and tearing your stockings as you fall into a mud puddle.